In February 1996, when I was still in high shool, my life took a U-turn. I suddenly had to deal with Lupus, a chronic auto-immune disease. Having a chronic illness forces you to take a look at your life and your goals, even if you have no desire to do so.
My goal is to inspire you and to make your “alternative” life just a bit more sparkling, when all you see is the grey of pills and doctors and pain. The first step in this process is my book ‘Ziekelijk Gelukkig; Positief leven met een chronische ziekte’ (Scriptum, 2010). It roughly translates to ‘Sickeningly happy: positive living with chronic illness’. Unfortunately there’s no English translation for my book (yet).
I believe we are for the most part responsible for our own happiness. When you hear you have a chronic illness, there’s a time for grief. But at it certain point you have to choose: dwell in your sorrows or taking your life in your hands and making it work just as it is.
Every time you’ll find yourself so low, there will be a way up soon. I have been living with Lupus for 22 years now and I am 39 years old. There were long periods of just lying in bed, staring at the ceiling. There were just as much long periods of rehabilitation, either in a rehabilitation center, in the hospital or with a pshysical therapist. In those moments life goes by without me really noticing. Sometimes I am to tired to have fun or be inspired but other times I crave it so much, it gets me through and moving.
“The future belongs to those who believe in the beauty of their dreams.” – Eleanor Roosevelt
The mind and the body are one. By this I don’t mean your mind has created a disease. I don’t think I have lupus because I have issues with something in my past, was particularly angry, afraid or hated my body or any of those Louise Hay reasons for being ill. I do believe that our circumstances (pollution, exhaust fumes and other poisons) play a role and that the food we choose to feed ourselves with plays a big part, but also things like the stress we experience in daily life.
When my energy levels are low, I function ons passion, enthousiasm, a lust for life, idealism and sheer determination. I use it to write blogs, books, e-books and e-courses but also to be a guest speaker at events. I love to show people that even though you might have a dissability, there’s still a lot possible. I want people to have hope and be their online support in though times. My daily low dose of energy I compensate with efficiency, flexibility and creativity. Even on my off days, my brain is always “on”. You can imagine I never go anywhere without pen and paper!
In my spare time, but also in my work, I love to dive deeper into (positive) psychology, I do a lot of research on every subject that intrigues me or might help me deal with chronic illness or lead a better life and I write like my life depends on it. Those writings mostly end up here and also some of my other work (I created this WordPress site myself, but I do know when to ask for help). I am grateful that there are so many opportunities and I am definately taking them and sharing with you here.
What can I do for you? In this moment I do a few different things: I write articles for patient magazines, I write content for folders, brochures and websites (commissioned), I am a guest speaker and also sometimes offer mini-workshops (both related to living with chronic illness), I edit books and content for websites (not only for organizations but also for private people), I blog and am reseaching a second (e-)book/e-course. Plus I am always on for developing new ideas.
I am a writer, blogger, editor, inspirator, researcher and guest speaker. Do you wish more information, also check ‘Work with me’ on this website or e-mail me at firstname.lastname@example.org. I would love to hear from you!