Sometimes I love to share a few Instastories when I’m travelling to a new place. This could be on a holiday or on a daytrip. And when I look back at my pictures and videos I always think the amount of things I get to do and see looks quite impressive. If it was someone else’s story I would have never guessed that person would life with a debilitatiting chronic illness that leaves her fatigued quite a bit. I would question how she would be able to do this all. I noticed that it’s so easy to create a picture on social media where you just show bits and pieces and people would fill in the blanks with their assumptions. And still my pictures do tell my story of that particular day: nothing more, nothing less. Below I will tell you how you can get the most out of a daytrip when dealing with fatigue and pain on a daily basis. [Lees meer…] overHow to have a great daytrip while dealing with fatigue
chronic illness
“I’m fine” (not really, but let’s not get into that now)
These days when people ask me how I feel, on most days I can honestly say “I’m fine, thanks”. Sometimes I add a few words, depending on who I talk to and what they know about me and the chronic illness I have: “considering the circumstances”. If I don’t add this it’s because I don’t feel like explaining myself. What ‘good’ means in my situation. Because ‘good’ will mean something different today than it does tomorrow and than it did yesterday. [Lees meer…] over“I’m fine” (not really, but let’s not get into that now)
Accepting chronic illness: a struggle
For a while I thought I really had accepted living with chronic illness. And that is true but… I did not know there was so much more to accept. [Lees meer…] overAccepting chronic illness: a struggle